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Stories of Patients

Heather -  Heather is one of the original members of the Pink Disease support group and details her journey with the disease.

Read Heathers story here.

Patrick - Patrick was born in 1952 and has Pink Disease since early childhood. 

Read Patricks story here.

Hazel - Hazel was born in mid 1945, one of 6 children. Hazel has suffered from Pink Disease her entire life.
Read Hazels story here.

If you have a story of your Pink Disease journey that you would like to share, or the journey of a family member, please contact Samara via the contact page or through the Facebook group here - 

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